Much To Celebrate

What's Not To Celebrate?
Post: 

I just turned 34.  Yes, I know I'm not old - that's not where I'm going at all.  One of the benefits to this whole Brain Cancer Thing is newfound perspective - every day is a blessing, kids.  Birthdays have always been exciting, celebrated milestones for me, and this year was no exception: Boyfriend took me out to see Secretariat, brought me home and fed me delicious homemade pizza and some yummy red wine.  The next morning he whisked me away for a weekend of camping, hiking and hot springs. Double-super-extra-credit for him! 

Yay for another year well-lived...

I turned 33 shortly after starting radiation (seven weeks) and chemotherapy last year.  I can hardly believe that was over a year ago.  So if 32 was the year I was diagnosed with brain cancer, 33 was the year I began to beat the crap out of that little brain tumor!  Not to mention the year I won my battle with MediCal.  And got my ability to drive back.  Every year brings new adventures - just what will the next year bring?

But let's not get ahead of ourselves...

I realize that I haven't updated you (healthwise) in a while, and some of you (so sweet!) have been asking.  Others have made comments that they don't know if I want to talk about it, so they haven't wanted to ask.  Well, I haven't wanted to bore you with it, but here's the quick update, for those of you who wonder:

The latest photo shoot:  My most recent MRI was October 5th.  The images show further reduction in "enhancement" (fancy medical term for irritation in the tissue) surrounding the tumor and the tumor's size remains stable.  This might not sound that exciting, but they're both really good things.  It means my continued monthly chemo is working,  and it's keeping the tumor from growing back at all.  Which means my brain is happy.  Which means fewer seizures.  Which makes me happy. 

The chemo story:  My monthly chemo regimen continues.  I take five doses of the oral chemotherapy drug Temodar over five days, every four to six weeks, depending on how quickly my blood counts recover each round.  I seem to be managing my chemo weeks a little better all the time.  I didn't even need a day off or any naps this last round (last week).  I just finished my eighth round of at least twelve rounds ("one year").  I may or may not continue for another year (or two...) after that, depending on what my doctors and I determine to be the best course of action.

Hello, hair:  Have you noticed?  My fabulous follicles are beginning to need regular taming!  Washing and drying!  Styling and product!  I started growing it back this spring, so you're looking at about six months worth of grow, baby, grow!  I kinda liked the pixie, but alas, this Girlbert has a few too many cowlicks to pull it off without just as much effort as having regular girl-hair, so I let it keep growing.  Might stop soon, though - short hair is fun!

In other news: Boyfriend turned 40 in September.  I threw him a nice little Birthday-Party-On-A-Budget at our Little Cabin in the Woods.  Lots of his friends came, brought food and/or helped me stay organized; making it a really wonderful day for him.  Thank you all!

Y'all keep asking: We're not moving to Marin County until I'm finished with chemo treatment, and that could be years.  I like (okay, so I LOVE them!) my doctors too much, and they know my case too well, to change providers mid-treatment.  I would also have to reapply for MediCal in Marin County if we moved, and I feel like I just finished that battle here in Santa Barbara!  Oh, and we're really happy in Santa Barbara: we have lots of friends here, and our cat and horse are happy here, too.  So we will stay.

Did I miss anything?

More answers to your most burning questions here, as well.

Comments

Healing and love!

Awesome Lisa!  Great picture. You look marvelous darling!  The "boyfriend" is not too bad either! Thanks for updating me.  I am celebrating with you and I love the humor and beautiful sharing of your journey.  Love NJ

Back at ya!

girlbert's picture

So good to hear from you, Nancy Joy!  Thanks for celebrating with me, I really appreciate your love and support.  Missing you lots - we'll have to talk again soon!

XOXO,

Lisa

Excellent!

rebelprince26's picture

So glad to hear all of this good news.  I do have one, BURNING question, though.  When are you going to come visit your little brother in London?  I mean, it's so cheap to fly to Europe these days!  ;)

If it's so cheap...

girlbert's picture

...why don't you send me a ticket?  ;-)

I can't wait to see you!

XOXO,

Your Big Sister

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