Tuber Update

A raisin of a tuber!
Post: 

People have been asking me for a health update. I've been meaning to write it but so much has been happening creatively and energetically, I've been procrastinating. I mean, who wants to talk about her brain tumor when there are so many other exciting things to do? Seriously.

But it's time. Mostly because I think I've spoken to enough doctors and reiterated the information to enough family members and close friends that I'm actually capable of writing an intelligent update at this point. A week ago, not so much. Who knew that I would someday speak fluent medical-ese?

To get you caught up.

I suffered a seizure almost a month ago when I was home alone. I had stayed up way too late, been working way too hard, and I've been really stressed for over six months now. The seizure, head trauma and resulting swelling caused two mild seizures (for which I was concious) a few days later, the day Boyfriend took me to the ER. A CT scan in the ER revealed that I have a fairly good-sized brain tumor in the right temporal lobe of my brain. I was informed by the ER doc that what I had experienced, both unconsiously and consciously were in fact seizures.  I was immediately admitted to the hospital for a week of tests and observation.

What the doctors are saying.

7 out of 8 of my western doctors* agree on the the basics of my situation: The combination of the tumor's presence and my stress level caused the first seizure. The sample taken from my biopsy, the size of the tumor, and my PET scan all indicate the tumor is slow-growing, low-grade, not aggressive, not metabolizing sugar, and only 10% of the cells are reproducing. Surgery and radiation aren't worth the risk at this time. Unless the tumor appears to grow or become more aggressive, it can be monitored very well with MRIs every two months. Oral chemo may shrink the tumor, but there's certainly enough time to feel out more options; there's no rush. All eight doctors do agree that I need to talk to specialists for more information and continue taking Keppra to prevent another seizure. I'm an otherwise healthy 32-year-old woman with a brain tumor.

*The eighth doctor believes that it was solely the brain tumor's presence that caused my seizure. But I KNOW how over-tired and stressed out I've been, so if I get a vote, I'm with the other seven.

What I'm doing for now.

I intend to follow up with the referrals to specialists by my doctors, and whatever tests and MRIs would allow me and my doctors to monitor the tumor. I am staying on the anti-seizure meds for now - my mind has become much clearer over the last week, although I still have to be careful not to try to do too much in any given day.

I have heard many good things about the oral chemo regimen, but will need to do my own research prior to signing on for the ingestion of 2 years worth of chemicals. I've been told that some people have all of the adverse reactions and none of the benefits; some are helped remarkably and have no nausea or side effects.

I've long been a student of metaphysics and alternative therapies, so pursuing alternative and mind-body medicine to treat my condition is an obvious route. I've spoken with many of my metaphysical friends and holistic health care providers for their ideas, support, and energy work. I've been doing some energy work with a magnificent shaman to whom I've just been introduced but have heard about for many months. He has given me homework to do - homework that I've intended to do for a long time anyway, but am now hyper-compelled to do, since being notified that I have a brain tumor. There are no accidents.

I will also be managing my health nutritionally, taking supplements and eating food with anti-cancer and tumor-fighting properties. Most of you know that I lead a fairly healthy lifestyle and eat really healthy anyway. I'll be consulting a nutritionist friend and this book to amp up my nutrition even further. Since my diagnosis I've been craving even more raw, fresh fruits and veggies than normal, so I'm thinking my body already has a good sense of what to do.

I've been doing my energy work, meditation and yoga practice daily. Sometimes I'm joined by Kitty and Boyfriend and it's good to have (even more) support!  I've been working less, relaxing more, and writing, writing, writing. I've been allowing myself to breathe and do what I love, and it's resulting in an increased level of synchronicity in my life! Amazing new contacts, dear old friends and fabulous opportunities abound! 

Next week I'm headed to Denver to stay with friends for the 2+ weeks Boyfriend will be sailing in New Zealand. I'll be relaxing with friends, both human and equine, and meeting with some healers there.

The picture at right shows the tuber's progression over the last 20 days.  My hard work is paying off - you can see that that it's shriveled to a mere raisin of its former, tubular self.

Comments

Perspective

I've been wallowing in self-pity because of the stress in my life, and guess what? I don't have a hangnail, much less a brain tumor. Your 'tude and wit are inspiring; tomorrow I may get up and do laundry, EVEN THOUGH I'M IN A BAD MOOD. Ride a horse for me in Denver, and hang in there, girlfriend.

it's not a tuber!  i really

rebelprince26's picture

it's not a tuber!  i really wish i could come visit you in cali...i could use a sun-kissed vacation destination right now.

 

but instead i'm off to new york.  i'll have a blue fin in your honor!  and i'll make nora sing like celine dion for you, too.

Call me when you get to NY

girlbert's picture

And I'll put some sun on the phone for you!

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